Gabby had her testing with the Endocrinologist over the week of Christmas. I worked hard to prepare her for the fact she had to receive an IV with medication once an hour for four hours. I actually feel she did great with it. Of course she wasn’t happy about it but did very little complaining and held perfectly still. The testing wasn’t difficult at all and the whole time she played on my iPhone while I worked from my laptop. Those are the joys of having WiFi at the hospital.
We saw the Endocrinologist again the first week of January and received her results. She does qualify for the next step in stopping her precocious puberty. He gave me four different options, which is probably the most difficult part. How do parents make medical decisions when we aren’t doctors? All four options had pros and cons, of course. The test results showed the puberty signals are coming from her brain instead of her ovaries which is a good thing, meaning it can be controlled for a couple of more years.
Unfortunately Gabby started her menstrual over the Christmas break which was a nightmare to handle. The poor thing is too young in the first place but mentally she is not even close to being mature enough to even understand it let alone handle it. She had no idea what was going on even when I tried to explain.
Her specialist believes we can put a stop to any progression with her puberty by administering a shot once a month. There is also an option for placing something small under her skin, which will last a solid year instead of getting an injection every month. This is an option we will try once we have proven the medication actually does work for her over at least two to three months time.
For Christmas Santa brought her an iPod Touch and it’s been a blessing. Gabby really connects to music and not only has that iPod brought joy to her, it has made me and T smile/giggle more than once. We will be sitting in the other room and hear Gabby singing along to a song she is listening to on her headphones. We won’t be able to hear the music but she has gotten pretty good at memorizing every single word to most her songs. It’s beyond adorable. Not to mention when we sit at this long doctor appointments it has worked to keep her calm and keep her mind off of what’s going on. That’s priceless.